And the Monday went on...

and now is Tuesday. So I went around in the big carousel of care yesterday. Something has changed since 10 years back I quick realized, the knowledge about pain is better.
After a day of tests and finally some decisions I got home with some new meds. If they take pain down. Well if 10 is the worst, I might get down on a 8 if I am lucky. That is with being situated in one place.
Painmeds is getting me back to thinking of drugaddiction. There can never be an addiction as long as you get benefit from your meds. So what many in care is talking about I don't really know. Maybe they are afraid themselves of getting into drugaddiction. The benefit of drugs for those who are in severe pain is just getting a life to live. So it's not like a big change that you feel you are in heaven or something. For a person in pain used to painmeds, the sideeffects often more is a bigger issue. It's a hard decision to make if you get benefit enough of the painmeds to take the sideeffects that comes along with the meds. I had a terrible nightmare and I was up at 5 after getting some weird pain. It felt like when you hit your tailbone real hard. After managing to the bathroom I then dropped my sense totally and couldn't feel a thing while peeing.
Now instead I feel like I need to pee constant 24/7. So pee or not to pee is the question !

Flare, didn't think I would get one....

I am having a very bad flare of my RSD/CRPS pain. I never thought I would get back to this stage again. My leg is cold, swollen from above knee down in foot. The foot feels like its is wrapped in, in some plastic or something. The very bad in all is the pain that is up over the roof and I have not the right meds that I need.
For those who aren't into RSD/CRPS here's a link to this bloody shit of pain.
http://www.rsds.org/2/what_is_rsd_crps/index.html

Mine started off very easily by slipping on ice 13 years ago and twisting my knee. After numerous surgeries and treatments suddenly my pain changed one day and got this awful pain that would make anyone scream. After that medical care some years later made a big mistake when I was going to get a spinal morphine pump and I ended up with emergency back surgery and now have partly paralysis waist and down and of course that got to be more on my right leg. That is the leg where I don't have my knee injury from beginning.
Lucky me huh ?
Oh well back to today. I think for now the biggest problem is that I have been so spolied latest years with my little sportswheelchair and getting around more and more easily and now today there is even a problem going to the bathroom without screaming in pain.
So tomorrow my mission in getting in touch with some miracle doc that will hopefully take away some of the pain. Right now I just hate my Alien aka my left knee. Go and burn somewhere else !